The Silent Pains of A Child With Autism

sad_boy

Our kids need to know they are loved. I just read a post which included a handwritten note by a special needs mom’s under ten year old stating basically that he was worthless since no one would come to his party, he had no friends.

sad_boy

My heart just broke into a million tiny pieces. This isn’t a one time thing, this is a recurring instance, every year, every party. So many of our children who are socially awkward feel this way. No, they don’t all write it out – some do but not all. But they carry this pain within them. Some not sure how to let it out, how to deal with it  or how to get past it because they are children. Children who should never feel this way – EVER!

As moms and dads our hearts break for our children when they suffer pain. But can you even imagine what it’s like as the child who feels so unloved not by his family but because of a lack of friends he would write a message of such low self-worth of himself?

And it isn’t just kids with autism, it’s lots of kids – kids with special needs, kids who feel different, kids who are shy, kids who are socially awkward. This should not happen. Not to any child, not ever. I’m sorry, I don’t usually get so verbal about this but tonight my heart just broke not only for this little child but for his mom because I’ve been there. I’ve had my child feel worthless because he didn’t have any friends. I’ve wiped away his tears and did my best to take away the pain but sometimes we just can’t take it all away no matter how hard we try, how much we wish we could.

© 2015, Nanette Gomez. All rights reserved.

Birdhouse for Autism: A Special Needs Parents Must Have App

birdhouse

birdhouse

Speech therapy, social skills therapy, swim class, occupational therapy, this supplement at this time, that supplement at that time, neurofeedback appointments – UGH, it’s all so overwhelming! Sometimes you are so busy going back and forth trying not to miss anything you get all out of whack and of course miss something.

If you are a mom or dad with a child with autism you know exactly what I’m talking about. Doctors and therapists want you to track, supplements need tracked, different methods of therapy need to be tracked – track, track, track! – so you know what is and what isn’t working.

I know, I’ve been there and boy did I miss stuff – appointments, supplement dosages, etc. You name it and I probably missed it at least once. Sure I had sticky notes or notes in my calendar or planner or my notebook or on my phone but somehow I still managed to miss things.

birdhouse

Want to make all that tracking easier? This is it –> Birdhouse for Autism App. I know you’re thinking “great one more thing to have on my phone. If I couldn’t track on my planner what makes you think I can do it with an app?”  Here’s why!

1. It’s made for parents of kids with autism by parents of kids with autism.

2. It makes tracking behavior patterns easier.

3. It makes tracking the effectiveness of supplements easier so you can figure out what is working and what isn’t and if you are staying on track taking/administering them. You can create a recurring nutrition or therapy so you don’t have to continually input the information.

4. Just in the short time I have been using the app, there have been several new additional benefits to it. It is obviously still being worked on and every time they find some method to making better use of this app, they will.

5. Sleep, mood, meltdown, poop tracking. Yes, we even have to track poop. Oh the things dr.’s ask us to track.

6. Reports! Yes, you can now compare, contract, chart and graph your child’s information.

7. You can track foods your child eats throughout the day making it easier for you to determine if there is anything they are eating that may be causing meltdowns or behavior issues.

8. You can use the app for more than one child. Add as many as you need to.

9. It’s more than just an app. You can input information via your computer at Birdhouse for Autism.

10. Free version and a premium version. Either would be extremely beneficial. Compare the benefits of both and see which one will work better for you. The cost of the premium version is minimal.

I wish I had had this app several years ago when we were trying to do and track a million and one things with my little Bug. ‘Cause you know you never know how well something is working unless you track it. But remember an app is only as useful a tool as you make it. If you take the time to get the full use out of this app then you will find it’s true value.

To learn more please visit them on facebook at https://www.facebook.com/birdhouseforautism or on their blog http://blog.birdhousehq.com/

I was provided a trial premium version at no charge in order to perform this review. No compensation took place. As always, all thoughts and opinions are my own.

© 2015, Nanette Gomez. All rights reserved.

Some Homeschool Days are Just Plain Rough

math

fractions of a number

Some homeschool days are just not easy. Today was one of those days. Frustrating for me, frustrating for him. I literally just wanted to scream and cry. Scream from the frustration, cry because I couldn’t help him. I felt so lost, so helpless. So afraid for Bug’s future. Yes those thought of what happens when he has a day like this at work as an adult with a job. They are always there.

It was rough, not that the work was rough but sometimes Bug’s brain just totally blocks out things that I know he knows how to do.

But one thing a friend of mine continues to remind me is that it’s ok to stop, it’s ok to take a break and let both of us regroup. It just breaks my heart to see my son in tears because he can’t remember what to do when he’s asked to “group” things together.

So I did it, I said enough! He needed a break and so did I. He had to go let all that frustration out and bring himself back down to a calm state of mind so he could continue. So after I held him in my arms as he allowed those tears of frustration to fall, I let him do that, I let him go on his own so he could regain his composure.

I just didn’t want to face those math problems again, not yet. He worked on language arts and did just fine. For some reason, his brain just was refusing to think in terms of math today. But I couldn’t just let him give up. So after the hugs, tears, a break, Language Arts and lunch I decided to jump back in and hoped and prayed we could get through math now.

teddy bear counting

I pulled the teddy bear counters out again and as calmly as I could I worked with him trying my best not to let frustration get a hold of me again. Today’s frustrations were not his failure but mine. Can I just please remember it’s ok to take a break when we need it? This isn’t public school, why won’t my brain remember that?

© 2014, Nanette Gomez. All rights reserved.